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Sitting Pretty: The View from My Ordinary Resilient Disabled Body
By Rebekah Taussig. 2020
A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to…
paint a beautiful, nuanced portrait of a body that looks and moves differently than most.Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.This is an inclusive, nonjudgmental, and empowering guide to pregnancy, childbirth, and postpartum life that puts mothers first, offering straightforward…
guidance on all the options and issues that matter most to them and their partners when preparing for a babyUn espace entre les mains: récit
By Émilie Choquet. 2020
Frondeuse et brillante, une jeune femme se prépare à ajouter un élément à la liste de ses réalisations : avoir…
un enfant. Tout au long de la grossesse, la maternité a fait lobjet d'une préparation minutieuse. Les projets ne manquent pas pour remplir de moments magiques le temps avec le bébé. Mais dès l'accouchement, où le scénario prévu ne se réalise pas, le savoir accumulé pendant des mois se retourne contre la mère. Le corps et lesprit, apprend-elle, n'agissent pas toujours de concert. De retour à la maison, la nouvelle mère fait face à la fatigue qui s'accumule et à des journées où s'enchaînent séances d'allaitement, bercements, changements de couche. Malgré ses efforts pour éviter que la situation ne lui échappe, des failles apparaissent partout. Dans l'espace qui se creuse entre sa perception du monde et le réel, sa raison s'égare peu à peu. L'hospitalisation devient nécessaire. On ne sait ni quand ni comment elle parviendra à sortir de la boucle temporelle dont elle est prisonnière. Ce sera à elle de trouver à tâtons la voie hors du labyrintheJe n'en ai jamais parlé à personne
By Martine Delvaux. 2020
"En octobre 2017, devant la vague de témoignages suscitée par le mouvement #moiaussi, j'ai senti une urgence : une fois…
sorties du silence, nous ne devions pas y retourner. C'est la raison pour laquelle j'ai lancé un appel. Ce livre est une chambre d'échos. Un chœur. Sans déesse ni héroïne en tête, des voix avancent. Nous faisons front commun. Martine Delvaux. Je n'en ai jamais parlé à personne : paroles recueillies et agencées par Martine Delvaux"Still: A memoir of love, loss, and motherhood
By Emma Hansen. 2020
A moving, candid account of one woman's experience with stillbirth. Emma Hansen is 39 weeks and six days pregnant when…
she feels her baby go quiet inside of her. At the hospital, her worst fears are confirmed: doctors explain that her baby has died, and she will need to deliver him, still. Hansen gives birth to her son, Reid, amidst an avalanche of grief. Nine days later, she publishes a candid essay on her website sharing photos from the delivery room. Much to her surprise, her essay goes viral, sparking positive reactions around the world. Still shares what comes next: a struggle with grief and confusion alongside a desire to better understand stillbirth, which is experienced by more than two million women annually, but rarely talked about in public. At once honest, brave, and uplifting, Still is about one woman's search for her own definition of motherhood, even as she faces one of life's greatest challenges: learning to live after lossOne in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all…
are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people. From original pieces by up-and-coming authors like Keah Brown and Haben Girma, to blog posts, manifestos, eulogies, Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites listeners to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and loveOur house is on fire: Scenes of a family and a planet in crisis
By Malena Ernman. 2020
Brought to you by Penguin. 'An extraordinary account of how one family rose, with unshakable moral clarity, to the tremendous…
responsibility of being alive at the moment when our immediate collective decisions will determine the fate of life on Earth. They share their story of courage not because they want our accolades, but because they demand our company. Greta Thunberg has already inspired a global moment - this book is part of how we will win' Naomi Klein This is the story of a family led to confront a crisis they had never foreseen. Of a happy life with two young daughters which suddenly falters, never to be the same again. Aged eleven, the eldest stops eating and speaking, and her younger sister struggles to cope. Slowly, alongside diagnoses of autism and selective mutism, their desperate parents become aware of another source for their firstborn daughter's distress: her imperilled future on a rapidly heating planet. Steered by her determination to understand the truth, the family begins to see the deep connections between their own and the planet's suffering. Against forces that try to silence them, disparaging them for being different, they discover ways to strengthen, heal, and act in the world. And then, one day, fifteen-year-old Greta decides to go on strikeJe ne suis pas un talisman
By Bibiana Mbushi. 2012
" J'ai un peu plus de onze ans, et je m'appelle Bibiana. Tanzanienne à la peau blanche, je suis albinos.…
Certaines personnes pensent que nous sommes des êtres magiques et que nous priver d'un bras ou d'une jambe n'aura pas de conséquences car nos membres portent bonheur et repoussent. Ceci est mon histoire. " -- 4e de couvUne cure d'amour
By Elton John. 2012
" Elton John est un survivant. Il en prend conscience dans les années 80 alors que la plupart de ses…
amis artistes meurent les uns après les autres d'une maladie alors mal connue et objet d'autant de préjugés que de répulsion. Pourtant il continue à vivre comme avant : excès de drogue et de sexe. Dans ce livre très émouvant, Elton John se livre pour la première fois. Sa remise en question démarre en 1985 alors qu'il accompagne Ryan White, jeune malade du Sida, tout au long de son agonie... " -- 4e de couvQuand j'étais invisible
By Martin Pistorius. 2013
" A douze ans, Martin tombe inexplicablement malade. Il devient muet, en fauteuil roulant, et incapable du moindre mouvement. Les…
médecins affirment que son cerveau est totalement détruit. En réalité, si le corps de Martin est inerte, son esprit fonctionne parfaitement. Littéralement prisonnier, il ne peut même pas cligner des yeux pour se manifester. Le pire, ce sont ces infirmières qui le traitent désormais comme une chose, au point de lui faire subir des abus inimaginables... Jusqu'au jour où, après onze années de cauchemar, un thérapeute entrevoit de la vie chez Martin. Et peu à peu, le jeune homme se "réveille" à la vie. Un formidable combat, une extraordinaire renaissance. Martin recommence à marcher, parler et finit par se marier. Avant de raconter son histoire... Le témoignage bouleversant d'un enfant prisonnier 11 ans dans son propre corps. " -- 4e de couvDyslexique et alors?: un autre regard sur le handicap
By Sabine Laîné. 2009
Fantine et Jérôme voulaient dix enfants. Ils n'en eurent qu'un, Ugo. Un enfant extraordinaire, un enfant aux richesses insoupçonnées. Et…
il en avait du courage, Ugo. Pour dix ! Car il était dys. Dyslexique, dans un monde où il ne fait pas bon être différent. Au début, c'était le bonheur, l'insouciance, l'éveil à la vie, une vie ordinaire. Puis, vint le temps de l'inquiétude... C'est quand même curieux qu'il parle toujours aussi mal ! Puis, celui des doutes... Il n'arrive même pas à apprendre à lire ! Il est bête ou quoi ! Ou fainéant... Et celui de la révolte, quand ils comprirent enfin et commencèrent à se battre. Pas contre la dyslexie, mais contre l'inertie de toute une société... Des années à souffrir aux côtés d'Ugo, à vivre avec un handicap invisible. Et la différence. Même pas l'indifférence, qui eût été plus douce, finalement ! -- 4e de couvThe new rules of pregnancy: what to eat, do, think about, and let go of while your body is making
By Danielle Claro, Adrienne L. Simone, Jaqueline Worth. 2020
Finally, a calming pregnancy book that cuts through the noise to tell expectant mothers exactly what they need to know-and…
what they can stop obsessing about and over-researching. In The New Rules of Pregnancy, two leading OB-GYNs guide you, the modern pregnant woman, through all aspects of pregnant life in an easy-to-digest, compassionate, and motivating way. Instead of a detailed week-by-week look at your baby's development, it's all about you and how to help your pregnancy go as smoothly as possible. It assumes an intelligent, busy listener (who, somewhere inside, is shouting, "Just tell me what to do!"). Every aspect of pregnant life is covered-from the practical details (how to fly pregnant) to the complex issues ("What makes it postpartum depression?"). The book also covers that critical "fourth trimester"-"Nursing" and "How to Feel Like Yourself Again"-because once the baby is born, self-care typically goes out the window, and you really need someone to have your back. Its strong point of view and expertise come from gynecologist Adrienne Simone and obstetrician Jaqueline Worth-two renowned New York doctors dedicated to bringing patients the safest, calmest, least invasive pregnancies possible. The book's voice-motivating, supportive, real-comes from Danielle Claro, coauthor of The New Health RulesBlue Sky Kingdom: An Epic Family Journey to the Heart of the Himalaya
By Bruce Kirkby. 2020
One morning at breakfast, while gawking at his phone and feeling increasingly disconnected from family and everything else of importance…
in his world, it strikes writer Bruce Kirkby: this isn’t how he wants to live. Within days, plans begin to take shape. Bruce, his wife Christine, and their two children—seven-year-old Bodi and three-year-old Taj—will cross the Pacific by container ship, then travel onward through South Korea, China, India and Nepal aboard bus, riverboat and train, eventually traversing the Himalaya by foot. Their destination: a thousand-year-old Buddhist monastery in the remote Zanskar valley, one of the last places where Tibetan Buddhism is still practised freely in its original setting. Taken into the mud-brick home of a senior lama, Tsering Wangyal, the family spends the summer absorbed by monastery life. In this refuge, where ancient traditions intersect with the modern world, Bruce discovers ways to slow down, to observe and listen, and ultimately, to better understand his son on the autism spectrum—to surrender all expectations and connect with Bodi exactly as he is. Recounted with wit and humility, Blue Sky Kingdom is an engaging travel memoir as well as a thoughtful exploration of modern distraction, the loss of ancient wisdom, and the challenges and rewards of intercultural friendships.Defining the Boundaries of Disability: Critical Perspectives (Routledge Advances in Disability Studies)
By Matthew C. Murray, Licia Carlson. 2021
This ground-breaking volume considers what it means to make claims of disability membership in view of the robust Disability Rights…
movement, the rich areas of academic inquiry into disability, increased philosophical attention to the nature and significance of disability, a vibrant disability culture and disability arts movement, and advances in biomedical science and technology. By focusing on the statement, "We are all disabled", the book explores the following questions: What are the philosophical, political, and practical implications of making this claim? What conceptions of disability underlie it? When, if ever, is this claim justified, and when or why might it be problematic or harmful? What are the implications of claiming "we are all disabled" amidst this global COVID-19 pandemic? These critical reflections on the boundaries of disability include perspectives from the humanities, social sciences, law, and the arts. In exploring the boundaries of disability, and the ways in which these lines are drawn theoretically, legally, medically, socially, and culturally, the authors in this volume challenge particular conceptions of disability, expand the meaning and significance of the term, and consider the implications of claiming disability as an identity. It will be of interest to a broad audience, including disability scholars, advocates and activists, philosophers and historians of disability, moral theorists, clinicians, legal scholars, and artists.Sitting pretty: The view from my ordinary, resilient, disabled body
By Rebekah Taussig. 2020
A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to…
paint a beautiful, nuanced portrait of a body that looks and moves differently than most. Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling. Writing about the rhythms and textures of what it means to live in a body that doesn't fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different storyBionic beasts: Saving animal lives with artificial flippers, legs, and beaks
By Jolene Gutiérrez. 2021
What happens when a young elephant steps on a buried land mine? What happens when a sea turtle's flipper is…
injured by a predator? Thanks to recent advances in technology, we have new ways to design and build prosthetic body parts that can help these animals thrive. Meet an Asian elephant named Mosha, a Kemp's ridley sea turtle named Lola, a German Shepherd named Cassidy, a greylag goose named Vitória, and Pirate, a Berkshire-Tamworth pig. Each of these animals was struggling, but through a variety of techniques and technologies, humans created devices that enabled the animals to live and move more comfortably. Discover the stories of how veterinarians, doctors, and even students from around the world used 3D printing and other techniques to build bionic body parts for these amazing animalsUne épine empourprée (T minuscule)
By Michaël La Chance. 2019
« J'écrivais ceci encore abasourdi par un accident cérébral. Ce témoignage a-t-il un intérêt hors de moi-même ? J'étais trop…
étourdi pour convoquer le regard des autres, mesurer la lecture qu'ils pourraient en faire. La vision trouble, la marche entravée, j'écrivais sur le vif, à la recherche d'une trame symbolique pour réparer ma vie intérieure fracassée par l'accident silencieux. Soudain je regardais les choses comme une énigme, les êtres naturels comme des prodiges. J'étais devenu ma propre énigme, plus précisément, j'entrevoyais mes facultés, pour peu qu'elles me permettaient de respirer et de penser, de parler et de marcher, comme des mécanismes précieux et fragiles. »Six Dots: A Story of Young Louis Braille
By Jen Bryant. 2016
An inspiring picture-book biography of Louis Braille—a blind boy so determined to read that he invented his own alphabet.**Winner of…
a Schneider Family Book Award!** Louis Braille was just five years old when he lost his sight. He was a clever boy, determined to live like everyone else, and what he wanted more than anything was to be able to read. Even at the school for the blind in Paris, there were no books for him. And so he invented his own alphabet—a whole new system for writing that could be read by touch. A system so ingenious that it is still used by the blind community today. Award-winning writer Jen Bryant tells Braille’s inspiring story with a lively and accessible text, filled with the sounds, the smells, and the touch of Louis’s world. Boris Kulikov’s inspired paintings help readers to understand what Louis lost, and what he was determined to gain back through books. An author’s note and additional resources at the end of the book complement the simple story and offer more information for parents and teachers. Praise for Six Dots: "An inspiring look at a child inventor whose drive and intelligence changed to world—for the blind and sighted alike."—Kirkus Reviews"Even in a crowded field, Bryant’s tightly focused work, cast in the fictionalized voice of Braille himself, is particularly distinguished."—Bulletin, starred review"This picture book biography strikes a perfect balance between the seriousness of Braille’s life and the exuberance he projected out into the world." — School Library Journal, starred reviewUnforeseen: the first blind Rhodes scholar : a memoir
By James J. Barnes. 2017
A historian's memoir of becoming the first blind Rhodes Scholar in the mid-1950s. Describes the deterioration of the author's eyesight…
during his first year at Oxford and his determination to press on. Relates his subsequent personal and educational achievments, including a PhD from Harvard and a distinguished forty-four-year teaching career. 2017Revised standards and guidelines of service for Library of Congress network of libraries for the blind and physically handicapped, 2017
By Association of Specialized and Cooperative Library Agencies, Association of Specialized and Cooperative Library Agencies Staff. 2017
Updated standards address staff, consultants, volunteers, and stakeholders of libraries serving blind and physically handicapped individuals. Offers guidelines for patron…
contact, lending, outreach, and for producing websites and reading materials. Covers budgets, policies and procedures, reports, and research and development. 2017