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Uses of disability in literature are often problematic and harmful to disabled people. This is also true, of course, in…
children’s and young adult literature, but interestingly, when disability is paired and confused with adolescence in narratives, compelling, complex arcs often arise. In From Wallflowers to Bulletproof Families: The Power of Disability in Young Adult Narratives, author Abbye E. Meyer examines different ways authors use and portray disability in literature. She demonstrates how narratives about and for young adults differ from the norm. With a distinctive young adult voice based in disability, these narratives allow for readings that conflate and complicate both adolescence and disability. Throughout, Meyer examines common representations of disability and more importantly, the ways that young adult narratives expose these tropes and explicitly challenge harmful messages they might otherwise reinforce. She illustrates how two-dimensional characters allow literary metaphors to work, while forcing texts to ignore reality and reinforce the assumption that disability is a problem to be fixed. She sifts the freak characters, often marked as disabled, and she reclaims the derided genre of problem novels arguing they empower disabled characters and introduce the goals of disability-rights movements. The analysis offered expands to include narratives in other media: nonfiction essays and memoirs, songs, television series, films, and digital narratives. These contemporary works, affected by digital media, combine elements of literary criticism, narrative expression, disability theory, and political activism to create and represent the solidarity of family-like communities.Children, Deafness, and Deaf Cultures in Popular Media (Children's Literature Association Series)
By John Stephens and Vivian Yenika-Agbaw. 2023
Contributions by Cynthia Neese Bailes, Nina Batt, Lijun Bi, Hélène Charderon, Stuart Ching, Helene Ehriander, Xiangshu Fang, Sara Kersten-Parish, Helen…
Kilpatrick, Jessica Kirkness, Sung-Ae Lee, Jann Pataray-Ching, Angela Schill, Josh Simpson, John Stephens, Corinne Walsh, Nerida Wayland, and Vivian Yenika-AgbawChildren, Deafness, and Deaf Cultures in Popular Media examines how creative works have depicted what it means to be a deaf or hard of hearing child in the modern world. In this collection of critical essays, scholars discuss works that cover wide-ranging subjects and themes: growing up deaf in a hearing world, stigmas associated with deafness, rival modes of communication, friendship and discrimination, intergenerational tensions between hearing and nonhearing family members, and the complications of establishing self-identity in increasingly complex societies. Contributors explore most of the major genres of children’s literature and film, including realistic fiction, particularly young adult novels, as well as works that make deft use of humor and parody. Further, scholars consider the expressive power of multimodal forms such as graphic novel and film to depict experience from the perspective of children. Representation of the point of view of child characters is central to this body of work and to the intersections of deafness with discourses of diversity and social justice. The child point of view supports a subtle advocacy of a wider understanding of the multiple ways of being D/deaf and the capacity of D/deaf children to give meaning to their unique experiences, especially as they find themselves moving between hearing and Deaf communities. These essays will alert scholars of children’s literature, as well as the reading public, to the many representations of deafness that, like deafness itself, pervade all cultures and are not limited to specific racial or sociocultural groups.Sexy Like Us: Disability, Humor, and Sexuality
By Teresa Milbrodt. 2022
Sexy Like Us: Disability, Humor, and Sexuality takes a humorous, intimate approach to disability through the stories, jokes, performances, and…
other creative expressions of people with disabilities. Author Teresa Milbrodt explores why individuals can laugh at their leglessness, find stoma bags sexual, discover intimacy in scars, and flaunt their fragility in ways both hilarious and serious. Their creative and comic acts crash, collide, and collaborate with perceptions of disability in literature and dominant culture, allowing people with disabilities to shape political disability identity and disability pride, call attention to social inequalities, and poke back at ableist cultural norms. This book also discusses how the ambivalent nature of comedy has led to debates within disability communities about when it is acceptable to joke, who has permission to joke, and which jokes should be used inside and outside a community’s inner circle. Joking may be difficult when considering aspects of disability that involve physical or emotional pain and struggles to adapt to new forms of embodiment. At the same time, people with disabilities can use humor to expand the definitions of disability and sexuality. They can help others with disabilities assert themselves as sexy and sexual. And they can question social norms and stigmas around bodies in ways that open up journeys of being, not just for individuals who consider themselves disabled, but for all people.Diagnosing Folklore: Perspectives on Disability, Health, and Trauma
By Trevor J. Blank, Andrea Kitta. 2015
Diagnosing Folklore provides an inclusive forum for an expansive conversation on the sensitive, raw, and powerful processes that shape and…
imbue meaning in the lives of individuals and communities beleaguered by medical stigmatization, conflicting public perceptions, and contextual constraints. This volume aims to showcase current ideas and debates, as well as promote the larger study of disability, health, and trauma within folkloristics, helping bridge the gaps between the folklore discipline and disability studies. This book consists of three sections, each dedicated to key issues in disability, health, and trauma. It explores the confluence of disability, ethnography, and the stigmatized vernacular through communicative competence, esoteric and exoteric groups in the Special Olympics, and the role of family in stigmatized communities. Then, it considers knowledge, belief, and treatment in regional and ethnic communities with case studies from the Latino/a community in Los Angeles, Javanese Indonesia, and Middle America. Lastly, the volume looks to the performance of mental illness, stigma, and trauma through contemporary legends about mental illness, vlogs on bipolar disorder, medical fetishism, and veterans' stories.*A New York Times Bestseller* A warm and hilarious memoir by a man diagnosed with Asperger syndrome who sets out…
to save his relationship.Five years after David Finch married Kristen, the love of his life, they learned that he has Asperger syndrome. The diagnosis explained David&’s ever-growing list of quirks and compulsions, but it didn&’t make him any easier to live with. Determined to change, David set out to understand Asperger syndrome and learn to be a better husband with an endearing zeal. His methods for improving his marriage involve excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies, including &“Don&’t change the radio station when she&’s singing along&” and &“Apologies do not count when you shout them.&” David transforms himself from the world&’s most trying husband to the husband who tries the hardest. He becomes the husband he&’d always meant to be. Filled with humor and wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism spectrum condition, and proof that a true heart is the key to happy marriage.Home Signs: An Ethnography of Life beyond and beside Language
By Joshua O. Reno. 2024
An intimate account of an anthropologist’s relationship with his non-verbal son and how it has shaped and transformed his understanding…
of closeness and communication. Home Signs grew out of the anthropologist Joshua Reno’s experience of caring for and trying to communicate with his teenage son, Charlie, who cannot speak. To manage interactions with others, Charlie uses what are known as “home signs,” gestures developed to meet his need for expression, ranging from the wiggle of a finger to a subtle sideways glance. Though he is nonverbal, he is far from silent: in fact, he is in constant communication with others. In this intimate reflection on language, disability, and togetherness, the author invites us into his and Charlie’s shared world. Combining portraits of family life and interviews with other caregivers, Reno upends several assumptions, especially the idea that people who seem not to be able to speak for themselves need others to speak on their behalf. With its broad exploration of nonverbal communication in both human and nonhuman contexts, Home Signs challenges us to think harder about what it means to lead a “normal” life and to connect with another person.This indispensable guide has over 200 simple, easy to implement therapeutic parenting activities which you can easily build into everyday…
life. Starting with a simple explanation of therapeutic parenting and how to do it, it provides a host of strategies and activities to help tackle common challenges faced by families affected by trauma. This includes improving communication and relationships, lessening conflict, building confidence, creating structure and routine, and handling big emotions. The activities range from short daily check-ins to reinforce attachment through to creative therapeutic activities. The ideas in this book will help create an environment of acceptance, safety, and respect, and enable you and your child to build a stronger, more connected relationship.The Discourse of Disability: Indian Perspectives
By Vivek Singh. 2024
This book explores the concept of disability through a social, political, cultural, religious, and economics lens. It challenges the categorization…
of ‘physically-disabled’ produced by way of legal, medical, political, cultural, and literary narratives that comprise an exclusionary discourse.The volume discusses themes like disability and identity politics; disability and the western epistemology; disability in India; disability and the Indian English fiction and Hindi cinema to question the embodied hegemony of ‘norms’ and their effects in the construction and history of societies. It analyses select literary and cinematic texts like Trying to Grow, Fireproof, and Animal’s People; and movies, Black and Lafangey Parindey to critically examine the representation of disabled people as freak, monstrous and animal. The book also makes policy recommendations for inclusive education and work norms for disabled people.This book will be beneficial for scholars and researchers of disability studies, cultural studies, film studies, and English literature.When My Ghost Sings: A Memoir of Stroke, Recovery, and Transformation
By Tara Sidhoo Fraser. 2023
A lucid exploration of amnesia, selfhood, and who is left behind when the past is obliterated Tara Sidhoo Fraser is…
thirty-two years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes - the person whose body she stole, whom she calls Ghost. Fighting to stabilize her existence, Tara struggles with the gulf between who she was and who she is now, while constantly battling and paying penance to Ghost. She meets Jude, who is also contending with their identity, the gap between who they are and who they present to the world. As Jude's transition progresses and they begin testosterone injections, Tara's conflict with Ghost heightens. Ghost's voice becomes stronger, and memories buried in the body they now share of hospital visits, old desires, and her ex threaten Tara's new relationship. She burrows deeper into the mystery of who she once was, recognizing the need to fuse herself and Ghost into one. When My Ghost Sings is a lyrical memoir of healing, a farewell letter, and a reclamation of selfhood.Routledge Handbook of Disability Studies
By Nick Watson, Simo Vehmas. 2020
This fully revised and expanded second edition of the Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability…
and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and arranged thematically, it surveys the state of the discipline, examining emerging and cutting-edge areas as well as core areas of contention.Divided in five parts, this comprehensive handbook covers: Different models and approaches to disability. How key impairment groups have engaged with disability studies and the writings within the discipline. Policy and legislation responses to disability studies and to disability activism. Disability studies and its interaction with other disciplines, such as history, philosophy, sport, and science and technology studies. Disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing 15 revised chapters and 12 new chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers, and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work.Chapter 6 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.The Disability Experience: Working Toward Belonging (Orca Issues #5)
By Hannalora Leavitt. 2021
People with disabilities (PWDs) have the same aspirations for their lives as you do for yours. The difference is that…
PWDs don’t have the same access to education, employment, housing, transportation and healthcare in order to achieve their goals. In The Disability Experience you’ll meet people with different kinds of disabilities, and you'll begin to understand the ways PWDs have been ignored, reviled and marginalized throughout history. The book also celebrates the triumphs and achievements of PWDs and shares the powerful stories of those who have fought for change.An Oral History of the Special Olympics in China Volume 3: Finding and Keeping a Job (Economy and Social Inclusion)
By William P. Alford, Mei Liao, Fengming Cui. 2020
This open access book brings together oral histories that record the experiences of individuals with intellectual disabilities in Shanghai as…
they participate in their careers. Employees with intellectual disabilities describe their experiences seeking, attaining, and maintaining employment. Their managers, colleagues, and family members also provide keen insight into the challenges and opportunities these individuals have encountered in the process of securing employment. An appendix provides a compilation of employment policies related to people with intellectual disabilities, particularly with respect to Shanghai.An Oral History of the Special Olympics in China Volume 1: Overview (Economy and Social Inclusion)
By William P. Alford, Mei Liao, Fengming Cui. 2020
This open access book is unique in presenting the first oral history of individuals with an intellectual disability and their…
families in China. In this summary volume and the two accompanying volumes that follow, individuals with an intellectual disability tell their life stories, while their family members, teachers, classmates, and co-workers describe their professional, academic, and family relationships. Besides interview transcripts, each volume provides observations and records in real time the daily experiences of people with an intellectual disability. Drawing on the methodologies of sociology and oral history, the summary volume provides an unprecedented account of how people with intellectual disabilities in China understand themselves while also examining pertinent issues of public policy and civil society that have ramifications beyond the field of disability itself.An Oral History of the Special Olympics in China Volume 2: The Movement (Economy and Social Inclusion)
By William P. Alford, Mei Liao, Fengming Cui. 2020
This open access book contains the oral histories that were inspired by the work of the Special Olympics in conjunction…
with the 50th anniversary of its founding. The foreword and prefatory materials provide an overview of the Special Olympics and its growth in the People’s Republic of China. The sections that follow record interview transcripts of individuals with intellectual disabilities living in Shanghai. In addition to chronicling the involvement of these individuals and their families in the Special Olympics movement, the interview transcripts also capture their daily lives and how they have navigated school and work.Loving Rachel: A Family's Journey from Grief
By Jane Bernstein. 2007
In 1983, Jane Bernstein had everything she ever wanted: a healthy four-year-old daughter, Charlotte; a happy marriage; a highly praised…
first novel; and a brand new baby, Rachel. But by the time Rachel was six weeks old, a neuro-ophthalmologist told Jane and her husband that their baby was blind. Although there was some hope that Rachel might gain partial vision as she grew, her condition was one that often resulted in seizure disorders and intellectual impairment. So began a series of medical and emotional setbacks that were to plague Rachel and her parents and strain their marriage to the breaking point. Spanning the first four years of Rachel’s life, Loving Rachel is a heartbreaking chronicle of a marriage and a compelling story of parental love told with searing honesty and surprising humor.The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the…
foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver. For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child&’s success. Over and over, parents are being asked to reinvent the exact same wheels. According to the CDC, &“Every 4 ½ minutes a baby is born with a birth defect in the United States.&” That&’s 1 in 33. There&’s no handbook for how to do this. Until now. Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you.Letters with Smokie: Blindness and More-than-Human Relations
By Rod Michalko, Dan Goodley. 2023
Letters with Smokie captures an epistolic exchange between Dan Goodley and Rod Michalko, or rather, Rod Michalko's late guide dog,…
Smokie. A lively exploration of human-animal relationships and disability as disruption, disturbance, and art, the book offers a refreshing re-evaluation of cultural misunderstandings of disability.Building the Inclusive City: Governance, Access, and the Urban Transformation of Dubai
By Victor Santiago Pineda. 2020
This Open Access book is an anthropological urban study of the Emirate of Dubai, its institutions, and their evolution. It…
provides a contemporary history of disability in city planning from a non-Western perspective and explores the cultural context for its positioning. Three insights inform the author’s approach. First, disability research, much like other urban or social issues, must be situated in a particular place. Second, access and inclusion forms a key part of both local and global planning issues. Third, a 21st century planning education should take access and inclusion into consideration by applying a disability lens to the empirical, methodological, and theoretical advances of the field. By bridging theory and practice, this book provides new insights on inclusive city planning and comparative urban theory. This book should be read as part of a larger struggle to define and assert access; it’s a story of how equity and justice are central themes in building the cities of the future and of today.Let's Cook! (Revised): 55 Quick And Easy Recipes For People With Intellectual Disability
By Anne Kissack, Elizabeth D. Riesz. 2021
Prepare your own healthy meals with success! In Let’s Cook! you’ll learn how to cook simple and nutritious meals—with recipes…
using all the MyPlate food groups. Gain confidence in the kitchen and build self-worth! Designed by and for adults with intellectual disability, Let’s Cook! promotes and reinforces life skills for independent living. Let’s Cook! can help you: Create healthy meals. Control carbs, calories, and salt. Follow food and kitchen safety. Eat well, today and every day! Inside Let’s Cook! you’ll find: More than 50 healthy “I can cook” recipes in large print are written at an early elementary reading level. An easy-to-follow recipe style sets forth What I Need, What I Use, What I Do. Color photos showcase each recipe. Step-by-step preparations take the guesswork out of cooking. Complete nutrient information is included for each recipe.No matter what challenges they face, your baby can self-feed, too! One in four children has feeding challenges and difficulty…
eating. If your child is one of them, mealtimes may be a struggle. Whether the reason is neurodiversity (such as Down syndrome), feeding aversion, or a medical condition, feeding therapist Jill Rabin and baby-led weaning pioneer Gill Rapley are here to help with a groundbreaking new approach for parents, caregivers, and health professionals alike: adapted baby-led weaning (ABLW). Find out how to: Respond to your baby’s signals and appetite—and trust their abilities. Improve your baby’s chewing, posture, sensory development, and fine motor skills. Use “bridge devices,” like silicone feeders, to encourage independent eating. Support your baby to eat real, healthy food and enjoy mealtimes with the rest of the family.