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Showing 1 - 8 of 8 items
By Rebekah Taussig. 2020
A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to…
paint a beautiful, nuanced portrait of a body that looks and moves differently than most.Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.By Bruce Kirkby. 2020
One morning at breakfast, while gawking at his phone and feeling increasingly disconnected from family and everything else of importance…
in his world, it strikes writer Bruce Kirkby: this isn’t how he wants to live. Within days, plans begin to take shape. Bruce, his wife Christine, and their two children—seven-year-old Bodi and three-year-old Taj—will cross the Pacific by container ship, then travel onward through South Korea, China, India and Nepal aboard bus, riverboat and train, eventually traversing the Himalaya by foot. Their destination: a thousand-year-old Buddhist monastery in the remote Zanskar valley, one of the last places where Tibetan Buddhism is still practised freely in its original setting. Taken into the mud-brick home of a senior lama, Tsering Wangyal, the family spends the summer absorbed by monastery life. In this refuge, where ancient traditions intersect with the modern world, Bruce discovers ways to slow down, to observe and listen, and ultimately, to better understand his son on the autism spectrum—to surrender all expectations and connect with Bodi exactly as he is. Recounted with wit and humility, Blue Sky Kingdom is an engaging travel memoir as well as a thoughtful exploration of modern distraction, the loss of ancient wisdom, and the challenges and rewards of intercultural friendships.By Matthew C. Murray, Licia Carlson. 2021
This ground-breaking volume considers what it means to make claims of disability membership in view of the robust Disability Rights…
movement, the rich areas of academic inquiry into disability, increased philosophical attention to the nature and significance of disability, a vibrant disability culture and disability arts movement, and advances in biomedical science and technology. By focusing on the statement, "We are all disabled", the book explores the following questions: What are the philosophical, political, and practical implications of making this claim? What conceptions of disability underlie it? When, if ever, is this claim justified, and when or why might it be problematic or harmful? What are the implications of claiming "we are all disabled" amidst this global COVID-19 pandemic? These critical reflections on the boundaries of disability include perspectives from the humanities, social sciences, law, and the arts. In exploring the boundaries of disability, and the ways in which these lines are drawn theoretically, legally, medically, socially, and culturally, the authors in this volume challenge particular conceptions of disability, expand the meaning and significance of the term, and consider the implications of claiming disability as an identity. It will be of interest to a broad audience, including disability scholars, advocates and activists, philosophers and historians of disability, moral theorists, clinicians, legal scholars, and artists.By Harley Rustad. 2022
NATIONAL BESTSELLER In the vein of Jon Krakauer's Into the Wild, a riveting work of narrative nonfiction centering on the…
unsolved disappearance of an American backpacker in India—one of at least two dozen tourists who have met a similar fate in the remote and storied Parvati Valley.For centuries, India has enthralled Westerners looking for an exotic getaway, a brief immersion in yoga and meditation, or, in rare cases, a true pilgrimage to find spiritual revelation. Justin Alexander Shetler, an inveterate traveler trained in wilderness survival, was one such seeker. In his early thirties, Justin quit his job at a tech startup and set out on a global journey—across the United States by motorcycle, then down to South America, and on to the Philippines, Thailand, and Nepal—in search of authentic experiences and meaningful encounters while documenting his travels on Instagram. His enigmatic character and magnetic personality gained him a devoted following who lived vicariously through his adventures. But the ever-restless explorer was driven to seek out ever-greater extremes, and greater risks, in what had become a personal quest—his own hero’s journey. In 2016, he made his way to the Parvati Valley, a remote and rugged corner of the Indian Himalayas steeped in mystical tradition and shrouded in darkness and danger. There he spent weeks studying under the guidance of a sadhu, an Indian holy man, living and meditating in a cave. At the end of August, accompanied by the sadhu, he set off on a spiritual journey to a holy lake—one from which he would never return. Lost in the Valley of Death is about one man’s search to find himself, in a country where, for many Westerners, the path to spiritual enlightenment can prove fraught, even treacherous. But it is also a story about all of us and the ways, sometimes extreme, we seek fulfillment in life.By Howard Scott, Phyllis Aronoff, Marie-Claude Ouellet. 2021
By Leah Lakshmi Piepzna-Samarasinha. 2022
In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority…
of people will be disabled - and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation? Building on the work of their game-changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other - and the rest of the world - alive during Trump, fascism and the COVID-19 pandemic. Other subjects include crip interdependence, care and mutual aid in real life, disabled community building, and disabled art practice as survival and joy. Written over the course of two years of disabled isolation during the pandemic, this is a book of love letters to other disabled QTBIPOC (and those concerned about disability justice, the care crisis, and surviving the apocalypse); honour songs for kin who are gone; recipes for survival; questions and real talk about care, organizing, disabled families, and kin networks and communities; and wild brown disabled femme joy in the face of death. With passion and power, The Future Is Disabled remembers our dead and insists on our future.By Eliza Hull. 2023
The first major anthology by parents with disabilities. How does a father who is blind take his child to the…
park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 percent of people worldwide live with a disability, and many of them are also parents. And yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We’ve Got This, parents around the world who identify as Deaf, disabled, or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory, and empowering anthology that tackles ableism head-on. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit — disabled parents exist.’By Rod Michalko, Dan Goodley. 2023
Letters with Smokie captures an epistolic exchange between Dan Goodley and Rod Michalko, or rather, Rod Michalko's late guide dog,…
Smokie. A lively exploration of human-animal relationships and disability as disruption, disturbance, and art, the book offers a refreshing re-evaluation of cultural misunderstandings of disability.