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Sam and Chester: How a Mischievous Pig Transformed the Life of My Autistic Son
By Jo Bailey-Merritt. 2016
When Sam Bailey-Merritt was just two years old, almost overnight he lost the ability to communicate or function. His mother,…
Jo, was at a loss as to what to do as she saw her son grow increasingly isolated and begin to suffer from uncontrollable meltdowns. Eventually, Sam was diagnosed with autism.Sam's condition continued to worsen and, just when Jo had all but given up hope of being able to help him, the family went on a day trip to a nearby miniature pig farm. Sam immediately bonded with a tiny ginger piglet called Chester, who stood sad and alone, apart from the rest of the litter. The connection between the boy and the animal was immediate and their unusual friendship blossomed from the moment the family brought Chester home. The tiny pig refused to leave Sam's side - it was as if he knew that Sam needed a friend. And, for the first time in five years, Jo saw her son really laugh.While Sam's confidence grew, Chester grew in a different way: the micro pig that was supposed to become the size of a Cocker Spaniel in fact ballooned to three times that size - with hilarious consequences for the family! Chester has turned Sam's life around. He now has the ability to communicate his feelings, make friends and is caring and kind towards others.Sam and Chester is the heart-warming story of how a teacup-sized ginger pig helped to transform the life of a boy with autism. It is the emotional story of a mother's fight to win back her son.From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays…
exploring what it means to be black and disabled in a mostly able-bodied white America. Keah Brown loves herself, but that hadn&’t always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective.In The Pretty One, Brown gives a contemporary and relatable voice to the disabled—so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called &“the pretty one&” by friends) to navigating romance; her deep affinity for all things pop culture—and her disappointment with the media&’s distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute.By &“smashing stigmas, empowering her community, and celebrating herself&” (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds.Drawing on empirical research with older South Asian migrant women, this book puts forth new understandings on how older, settled,…
migrant women construct and understand age through recollections of key life course events that are structured around gendered positions. Divesting from a Western-centric view and applying a decolonial and Black feminist lens to ageing, the author presents intersectionality and transnational positionality as useful tools to connect old age, migration and memory in critical studies on aging. Chapters flesh out life course memories at different key stages and examines how the intersections of multiple markers of identity (race, gender, language, immigration status, age, etc.) shape how older South Asian migrant women understand and experience their lives. This book will be of interest to scholars with a focus on Gender Studies, Migration Studies, Ageing Studies, and Mobility Studies.Beryl: The Making of a Disability Activist
By Dustin Galer. 2023
Beryl Potter was a reserved working-class mother of three living a decent life, or so it seemed, when a harmless…
slip and fall marked the unravelling of everything that she had known about herself and the world around her. Over the course of six years, she endured unimaginable pain. As doctors raced to save her life, her limbs and eyesight were taken from her one by one. In the span of a few years, she lost nearly half her body, her financial security, her home, her husband, and any semblance of a recognizable future. A survivor of more than one hundred surgeries, a dangerous opioid addiction, and multiple suicide attempts, Beryl Potter devoted herself to bettering the lives of other people with disabilities and made a tremendous contribution to disability awareness from the 1970s to 1990s. In this unparalleled biography, Dustin Galer demonstrates how Beryl Potter seemed to crack the code of the social system that oppressed her. By wading into the weeds of her complicated life before and after her accident, Galer leaves readers with a complex portrait of a woman who defied and challenged gender and disability norms of her time, paving the way for disability justice.Beryl: The Making of a Disability Activist
By Dustin Galer. 2023
The story of a mid-century working-class housewife whose extraordinary physical transformation empowered her to become a dynamic social activist who…
fueled a movement to create a more inclusive future for people with disabilities.Long Lives Are for the Rich is the title of a silent ominous program that affects the lives of millions…
of people. In all developed countries disadvantaged and, especially, poor people die much earlier than the most advantaged. During these shorter lives they suffer ten to twenty years longer from disabilities or chronic disease. This does not happen accidentally: health inequalities – including those between healthy and unhealthy life styles – are mainly caused by social inequalities that are reproduced over the life course. This crucial function of the life course has become painfully visible during its neoliberal reorganization since the early 1980s. Studies about aging over the life course, from birth to death, show the inhumane consequences as people get older. In spite of the enormous wealth that has been piled up in the US for a dwindling percentage of the population, there has been growing public indifference about the needs of those in jobs with low pay and high stress, but also about citizens from a broad middle class who can hardly afford high quality education or healthcare. However, this ominous program affects all: recent mortality rates show that all Americans, including the rich, are unhealthier and dying earlier than citizens of other developed countries. Moreover, the underlying social inequalities are tearing the population apart with nasty consequences for all citizens, including the rich. Although the public awareness of the consequences has been growing, neoliberal policies remain tempting for the economic and political elites of the developed world because of the enormous wealth that is flowing to the top. All this poses urgent questions of social justice. Unfortunately, the predominant studies of social justice along the life course help to reproduce these inequalities by neglecting them. This book analyzes the main dynamics of social inequality over the life course and proposes a theory of social justice that sketches a way forward for a country that is willing to invest in its greatest resource: the creative potential of its population.Normal: A Mother and Her Beautiful Son
By Magdalena Newman. 2019
A moving and “inspiring” memoir from the mother of a child with Treacher Collins syndrome, with a foreword by R.J.…
Palacio, author of Wonder (Publishers Weekly, starred review).For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel’s severe Treacher Collins syndrome—a craniofacial condition—meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? In this moving memoir, Newman, with the help of her son, tells the story of raising Nathaniel, from the shock she and her husband faced when he was born, to the inspiration of Nathaniel’s own strength and quirky humor. All this while also facing both non-Hodgkins and Hodgkins lymphoma diagnoses of her own. This uplifting story of a family tackling complex and terrifying circumstances with love and resilience is a true testament to Magda and her family, and to families everywhere who quietly but courageously persist.Go the Way Your Blood Beats
By Emmett De Monterey. 2023
AN EXTRAORDINARILY MOVING AND ORIGINAL MEMOIR OF GROWING UP GAY AND DISABLED IN 1980s LONDONSHORTLISTED FOR THE SLIGHTLY FOXED BEST…
BIOGRAPHY PRIZE 2023 When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too heavy for his twenty-five-year-old artist parents and their happy, smiling baby.Growing up in south-east London in the 1980s, Emmett is spat at on the street and prayed over at church. At his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs. At his sixth form college for disabled students, he's told he will be expelled if the rumours are true, if he's gay.And then Emmett is chosen for a first-of-its-kind surgery in America which he hopes will 'cure' him, enable him to walk unaided. He hopes for a miracle: to walk, to dance, to be able to leave the house when it rains. To have a body that's everyday beautiful, to hold hands in the street. To not be gay, which feels like another word for loneliness. But the 'miracle' doesn't occur, and Emmett must reckon with a world which views disabled people as invisible, unworthy of desire. He must fight to be seen.'Vivid, engaging... this insightful memoir sheds light on the author's life as a disabled gay man who is often rendered invisible' Andrew McMillan, Guardian Book of the Day'A frank and intimate memoir written with an incredible clear-eyed intensity' Claire FullerEvery Cripple a Superhero
By Christoph Keller. 2019
'Fascinating ... compelling ... very funny' Sunday Times'A defiant call to arms ... affecting ... lingers long in the memory…
after its final page' Morning Star'A skilful act of literary witness, sharp, moving and funny' Joanne Limburg 'Christoph Keller ... ranks among the great Swiss writers' Neue Zürcher ZeitungMost stories of disability follow a familiar pattern: Life Before Accident. Life After Accident. For Christoph Keller, it was different: his childhood diagnosis with a form of Spinal Muscular Atrophy only revealed what had been with him since birth. SMA III, the 'kindest one', allows those who have it to live a long life, and it progresses slowly. There is no cure. By the age of 25, he had to use a wheelchair some of the time. 'There were two of me: Walking Me. Rolling Me.' By 32, he could still walk into a restaurant with a cane or on somebody's arm. At 45, 'Rolling Me' took over altogether.Intimate, absurdist and winningly frank, Every Cripple a Superhero is at once a memoir of life with a progressive disorder, and a profound exploration of the challenges of loving, being loved, and living a public life - navigating restaurants, aeroplanes, museums and artists' retreats - in a world not designed for you. Threaded throughout are Keller's own photographs of the unexpected beauty found in puddle-filled 'curb cuts', the pavement ramps that, left to disintegrate, form part of the urban obstacle course. Those puddles become portals into a different, truer city; and, as they do, so this book - told with humour and immense grace - begins to uncover a truer world: one where the 'normal' is not normal, where disability is far more widespread than we might think, and where there always exist, just alongside our own, the lives of everyday superheroes.Christy Brown: The Life That Inspired My Left Foot
By Georgina Louise Hambleton. 2007
Christy Brown was severely disabled with cerebral palsy, unable to use any part of his body other than his left…
foot. Doctors said he was a 'mental defective' and that he would never be able to lead any kind of normal life; Christy proved them wrong.His mother taught him to write using chalk on the worn floor of their small home, and Christy grew into a talented artist and writer. His 1954 memoir My Left Foot was made into an Oscar-winning film starring Daniel Day-Lewis, while his bestselling novel Down All the Days was described by the Irish Times as 'the most important novel since Ulysses'.Using previously unpublished letters and poems, this first authorised biography marks Christy Brown's importance as a writer and celebrates his indomitable spirit. His story proves that, with hope and determination, almost impossible odds can be overcome.The honest, compassionate and vital guide to getting older, from dementia to finances, medication to care homes'The most important book…
about the second half of your life you'll ever read. I wish everyone in the UK could be under Dr Lucy's care' SANDI TOKSVIG'This warm and compassionate book gets to the heart of older age' THE BRITISH GERIATRICS SOCIETY________Now more than ever, we need to talk about getting older.Many of us are living to a very great age. But how do we give those we love, and eventually ourselves, long lives that are as happy and healthy as possible?Dr Lucy's book gives us answers to the questions we can voice - and those that we can't. This essential guide will guide you through those important conversations around growing older, answering every question you might have, including:· How do we start the conversation?· How do we ask whether it's worth taking seven different medicines?· Is it normal to find you're falling out of love with someone, as they disappear into dementia?· Should Dad be driving, and if not, who can stop him?· What are the secrets of the best care homes?· When does fierce independence become bad behaviour?· How do you navigate near-impossible discussions around resuscitation and intensity of treatments?· And who decides what happens when we become ill?Serious, funny, kind and knowledgeable, this readable book helps guide us through essential conversations about getting older that go straight to the heart of what matters most.Blade Runner
By Oscar Pistorius. 2012
Blade Runner is the inspirational memoir of Oscar Pistorius. Discover his incredible, emotional journey from disabled toddler to international sports…
phenomenon.At eleven months old, Oscar Pistorius had both his legs amputated below the knee. His mother wrote a letter to be read by Oscar when he was grown up: 'A loser is not one who runs last in the race. It is the one who sits and watches, and has never tried to run.' On discovering that their son had been born with no fibulae, Oscar's parents made the difficult decision to have both his legs amputated, giving him the best possible chance of a normal life. Oscar received his first pair of prosthetic legs at just seventeen months, made specifically for him. From then on he became invincible: running, climbing and, with the encouragement of his older brother, getting into any mischief he could. Throughout the course of his life, Oscar has battled to overcome extraordinary difficulties to prove that, with the right attitude, anything is possible. Blade Runner charts the extraordinary development of one of the most gifted sportsmen and inspirational figures on the planet - from immobilised child to world-class sprinter.Alternative Ageing: How To Stay Looking and Feeling Younger For Longer
By Suzi Grant. 2006
'Suzi Grant knows the secrets of youth' The TimesLOOK AND FEEL YOUR BEST IN 2020 WITH ALTERNATIVE AGEING - THE…
NATURAL WAY TO FEEL YOUNG AGAINSuzi Grant is in her late sixties but you wouldn't know it. Still living life to the full, she knows the secrets of looking and feeling fabulous for ever. A leading blogger and researcher into ageing, Suzi has created this easy Alternative Ageing action plan to give you more energy and vitality. Inside you'll discover:- What foods to eat and avoid- How to keep your skin glowing- How to naturally boost your hormones- Easy fitness exercises- Simple stress busters- An average alternative-ageing day Follow the tips in Alternative Ageing and you'll soon discover a new you who looks and feels great and runs rings around your children - and even grandchildren.It's time to feel young all over again.Aliceheimer’s: Alzheimer’s Through the Looking Glass (Graphic Medicine)
By Dana Walrath. 2016
“Alice was always beautiful—Armenian immigrant beautiful, with thick, curly black hair, olive skin, and big dark eyes,” writes Dana Walrath.…
Alice also has Alzheimer’s, and while she can remember all the songs from The Music Man, she can no longer attend to the basics of caring for herself. Alice moves to live with her daughter, Dana, in Vermont, and the story begins. Aliceheimer’s is a series of illustrated vignettes, daily glimpses into their world with Alzheimer’s. Walrath’s time with her mother was marked by humor and clarity: “With a community of help that included pirates, good neighbors, a cast of characters from space-time travel, and my dead father hovering in the branches of the maple trees that surround our Vermont farmhouse, Aliceheimer’s let us write our own story daily—a story that, in turn, helps rewrite the dominant medical narrative of aging.” In drawing Alice, Walrath literally enrobes her with cut-up pages from Alice’s Adventures in Wonderland. She weaves elements from Lewis Carroll’s classic throughout her text, using evocative phrases from the novel to introduce the vignettes, such as “Disappearing Alice,” “Missing Pieces,” “Falling Slowly,” “Curiouser and Curiouser,” and “A Mad Tea Party.” Walrath writes that creating this book allowed her not only to process her grief over her mother’s dementia, but also “to remember the magic laughter of that time.” Graphic medicine, she writes, “lets us better understand those who are hurting, feel their stories, and redraw and renegotiate those social boundaries. Most of all, it gives us a way to heal and to fly over the world as Alice does.” In the end, Aliceheimer’s is indeed strangely and utterly uplifting.You know you're having a senior moment when...... you decide it's time to pull up your socks, and realise you…
forgot to put any on.If this sounds all too familiar, read on to discover whether your marbles just need a spring clean or you've well and truly lost them!Who Cares: The Hidden Crisis of Caregiving, and How We Solve It
By Emily Kenway. 2023
An intimate and deeply researched account of the experiences of unpaid caregivers, this &“beautiful book&” (Rob Delaney) calls for us…
all to put care at the center of our lives When Emily Kenway became the primary caregiver for her terminally ill mother, her life was changed forever. Although she was lonely, she was far from alone: millions of caregivers all around the world are silently suffering from poverty, isolation, and burnout. Saving their nations&’ economies billions by providing nonprofessional care, these people—primarily women—remain largely ignored by politicians, in part because the demands of care itself keep them from effectively advocating for their needs. In Who Cares, Kenway brings the caregiving crisis into the light. Blending expert research with insights from her own experience, Kenway shows us that building a world that cares for its caregivers requires us to fundamentally reimagine the role of care in our society, bringing it from the margins to the center of our collective life. Powerful and deeply reported, Who Cares is an essential read for anyone who has ever cared for, or will receive care from, another person—which is to say, for everyone.The Eldercare Consultant: Your Guide to Making the Best Choices Possible
By Becky Feola. 2015
Your elderly father's memory is failing fast. Your increasingly frail mother just took another fall. Whatever the situation, The Eldercare…
Consultant can provide the knowledge, support, and encouragement you seek. Weaving together real-life stories with the essential information needed to make the best decisions, this compassionate and practical guide helps you: Spot warning signs of physical and mental decline * Recognize when a loved one needs assistance * Determine the level of care needed * Evaluate the options-family caregiver, home health care, palliative care, senior housing, assisted living facilities-and select the right one * Discuss the issue with your loved one * Understand and manage the costs of care * Make the adjustment as smooth as possible * Avoid caregiver burnout * And more Author and eldercare expert Becky Feola knows first-hand that caring for someone who is no longer in complete control is hard...and the decision to seek outside help is one fraught with emotion. Her book helps cut the confusion, and turn an undeniably difficult transition into a journey of hope and love.When his mother-in-law died suddenly and his seriously ill father-in-law was left with no one to care for him, the…
author and his wife were thrust into the complex and overwhelming world of long-term care. Just months later his own father fell sick, and the couple struggled to help care for him too—from 1000 miles away. Over the next year-and-a-half, this ordinary family faced one crisis after another, as each day brought new struggle and pain, but also surprising rewards. They were among the 44 million Americans who are caring for elderly parents or relatives or friends with disabilities. Someone you love will almost certainly need long-term care services before they die. Nearly 70 percent of our parents will receive such help sometime during their old age—usually at home, though often in a nursing home. It will last for an average of three years, though one in five will need this assistance for five years or more. This book tells the sometimes painful, sometimes uplifting, and always compelling stories of the families who struggle every day with the care needs of their loved ones. The costs are crushing: and the weight of 77 million aging Baby Boomers will devastate our nation's already fragile system for funding this critical day-to-day assistance. How can we repair the tattered safety net that is so essential to our aged and disabled?Triggered: A Memoir of Obsessive-Compulsive Disorder
By Fletcher Wortmann. 2012
***AS FEATURED ON NPR'S TALK OF THE NATION***Imagine the worst thing in the world. Picture it. Construct it, carefully and…
deliberately in your mind. Be careful not to omit anything. Imagine it happening to you, to the people you love. Imagine the worst thing in the world. Now try not to think about it. This is what it is like for Fletcher Wortmann. In his brilliant memoir, the author takes us on an intimate journey across the psychological landscape of OCD, known as the "doubting disorder," as populated by God, girls, and apocalyptic nightmares. Wortmann unflinchingly reveals the elaborate series of psychological rituals he constructs as "preventative measures" to ward off the end times, as well as his learning to cope with intrusive thoughts through Clockwork Orange-like "trigger" therapy.But even more than this, the author emerges as a preternatural talent as he unfolds a kaleidoscope of culture high and low ranging from his obsessions with David Bowie, X-Men, and Pokemon, to an eclectic education shaped by Shakespeare, Kierkegaard, Catholic mysticism, Christian comic books, and the collegiate dating scene at the "People's Republic of Swarthmore." Triggered is a pitch-perfect memoir; a touching, triumphantly funny, compulsively readable, and ultimately uplifting coming-of-age tale for Generation Anxiety.Fletcher Wortmann on OCD and sex:"If a girl accepts an invitation to help count the tiles on your bedroom ceiling, then she will probably be disappointed when she realizes you were speaking literally."…on OCD and religion:"I have found Catholicism and obsessive compulsive disorder to be deeply sympathetic to one another. One is a repressive construct founded in existential terror, barely restrained by complex, arbitrary ritual behaviors; the other is an anxiety disorder."…on OCD humor:"By the sink, I noticed a perfunctory sign warning readers to wash their hands. It was scrawled with graffiti: NO YOU CAN'T GERMS ARE UNPREVENTABLE AND INESCAPABLE."…on the seductiveness of OCD:"Every so often, everything will work, and you will somehow convince yourself that you are safe, and the disorder will claim credit. I had struck a bargain with the OCD. The transaction was complete. In that moment I became subservient to it."But Everyone Feels This Way: How an Autism Diagnosis Saved My Life
By Paige Layle. 2024
In But Everyone Feels This Way, Autism acceptance activist and multi-million-follower TikTok influencer Paige Layle shares her deeply personal journey…
to diagnosis and living life autistically. It all started out pretty normal: Paige lived in the countryside with her parents and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer 'why?' in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control. But Paige was normal. She smiled in photos, picked her feet up when her mum needed to vacuum instead of fleeing the room, and did well at school. She was popular and well-liked. And until she had a full mental breakdown, no one believed her when she claimed that she was not okay.Women are frequently diagnosed with autism much later than men, often in their late teens or early twenties. Armed with her new diagnosis, Paige set out to learn how to live her authentic, autistic life, and discovered how autism could be a source of strength. She challenges stigmas, taboos, and stereotypes so that everyone can see themselves authentically. Along the way, her online activism has spread awareness, acceptance, and self-recognition in millions of others.