Service Alert
Website maintenance April 24 10pm ET
On Wednesday April 24 at 10pm ET the CELA website will be unavailable for about 15 minutes for planned maintenance.
On Wednesday April 24 at 10pm ET the CELA website will be unavailable for about 15 minutes for planned maintenance.
Showing 1 - 20 of 36 items
By Dustin Galer. 2023
The story of a mid-century working-class housewife whose extraordinary physical transformation empowered her to become a dynamic social activist who…
fueled a movement to create a more inclusive future for people with disabilities.By Christine Hyung-Oak Lee. 2017
“A brave, encouraging, genuine work of healing discovery that shows us the ordinary, daily effort it takes to make a…
shattered self cohere.” — Floyd Skloot, author of In the Shadow of Memory“The stuff of poetry and of nightmares… [Lee] investigates her broken brain with the help of a journal, beautifully capturing the helplessness, frustration, and comic absurdity (yes, a book about a stroke can be funny!) of navigating life after your world has been torn apart.” — Susannah Cahalan, author of Brain on Fire“Lee excavates her life with the care of an archeologist in this stunning memoir...Her account is lyrical, honest, darkly comic, surprising, and transcendent in the way it redefines the importance of family history, memory, and what of it we choose to hold with us. A beautiful book.” — Christa Parravani, author of Her: A Memoir“A searing memoir buoyed by hope.” — People“This honest and meditative memoir is the story about how Hyung-Oak Lee rebuilt her life, quite literally one step at a time, and how she discovered the person she had always wanted to become.” — Refinery29.com“Honest and insightful” — New York Times Book Review“Emotionally explicit and intensely circumspect... . With careful thought and new understanding, the author explores the enduring mind-body connection with herself at the nexus of it all. A fascinating exploration of personal identity from a writer whose body is, thankfully, ‘no longer at war.’” — Kirkus Reviews“Fearless... [Lee’s] engaging memoir...makes a difficult topic accessible and relatable. Lee expertly explains how the brain works and how even a damaged brain can adapt. Her narrative is both scientific and emotional, revealing the wonders of biology and the power of the human spirit.” — BooklistBy John Carlin. 2014
Oscar Pistorius was eleven months old when he had both legs amputated below the knee, due to congenital fibular disease.…
Despite this severe disability, Pistorious grew up to be an extraordinary athlete, inspirational role model, and global symbol of resilience. In 2012 he became the first amputee runner in history to compete in the Olympics and was hailed as a hero not only in his native South Africa but around the world.Everything changed for Pistorius in the early morning hours of February 14, 2013—Valentine's Day—when he shot and killed his girlfriend, model Reeva Steenkamp, through a closed bathroom door, allegedly because he mistook her for an intruder intent on doing him harm. He was arrested and charged with premeditated murder, and overnight, the public's view of Pistorius turned on its head.Not since the O. J. Simpson case has a courtroom drama riveted global attention on one man's fate. Acclaimed journalist John Carlin's vivid firsthand account of Pistorius's seven-month murder trial, broadcast worldwide from Johannesburg, details the wrenching emotional breakdowns and merciless interrogation of the accused on and off the stand, the fraught relationship between the Pistorius and Steenkamp families, and the highly controversial verdict of culpable homicide, for which Pistorius received a five-year sentence.But Chase Your Shadow is far more than just a sensational crime story, as Carlin shows through meticulous reporting and extensive access to Pistorius and his family and friends. This courtroom confrontation between a white, privileged, twenty-seven-year-old male athlete on trial for murder and the black female judge who alone would decide his fate—held in a democratic country trying to exorcise its history of racial hatred and endemic violence against women—exposes the complex social and political realities of post-Apartheid South Africa.By Oksana Masters. 2023
&“A gut-wrenching, wildly inspiring story about overcoming the most daunting obstacles through steely tenacity, sheer will, and a great big…
dose of motherly love.&” —Jeannette Walls, #1 New York Times bestselling author of The Glass Castle An inspirational and powerful memoir from the United States&’s most decorated winter Paralympic or Olympic athlete, The Hard Parts is Oksana Masters gripping account of overcoming extraordinary Chernobyl disaster–caused physical challenges to create a life that challenges everyone to push through what is holding them back.Oksana Masters was born in Ukraine—in the shadow of Chernobyl—seemingly with the odds stacked against her. She came into the world with one kidney, a partial stomach, six toes on each foot, webbed fingers, no right bicep, and no thumbs. Her left leg was six inches shorter than her right, and she was missing both tibias. Relinquished to the orphanage system by birth parents daunted by the staggering cost of what would be their child&’s medical care, Oksana encountered numerous abuses, some horrifying. Salvation came at age seven when Gay Masters, an unmarried American professor who saw a photo of the little girl and became haunted by her eyes, waged a two-year war against stubborn adoption authorities to rescue Oksana from her circumstances. In America, Oksana endured years of operations that included a double leg amputation. Still, how could she hope to fit in when there were so many things making her different? As it turned out, she would do much more than fit in. Determined to prove herself and fueled by a drive to succeed that still smoldered from childhood, Oksana triumphed in not just one sport but four—winning against the world&’s best in elite rowing, biathlon, cross-country skiing, and road cycling competitions. Now considered one of the world&’s top athletes, she is the recipient of seventeen Paralympic medals, the most of any US athlete of the Winter Games, Paralympic or Olympic. Oksana&’s astonishing story of journeying through a series of dark tunnels is &“as true a tale of grit as I&’ve ever heard, with a message filled with triumph and beauty—that what doesn&’t kill us makes us stronger, if we are loved&” (Angela Duckworth, New York Times bestselling author of Grit).By Matt Hay. 2023
An inspiring memoir of a young man who discovered he was going completely deaf just at the moment he’d fallen…
in love for the first time.As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast.A personal soundtrack was Hay’s determined compensation for his condition. As a typical Midwestern kid growing up in the 1980s whose life events were pegged to pop music, Hay planned to commit his favorite songs to memory. He prepared a mental playlist of the bands he loved and created a way to tap into his most resonant memories. And the track he needed to cement most clearly? The one he and his new girlfriend, Nora—the love of his life—listened to in the car on their first date.Made vivid with references to instantly recognizable songs—from the Eagles to Elton John, Bob Marley to Bing Crosby, U2 to Peter Frampton—Soundtrack of Silence asks readers to run the soundtrack of their own lives through their minds. It’s an involving memoir of loss and disability, and, ultimately, a both unique and universal love story.By Ron Kovic. 2024
Ron Kovic, author of Born on the Fourth of July and one of the country's most powerful and passionate antiwar…
voices, completes his Vietnam Trilogy with this poignant, inspiring, and deeply personal elegy to America. WHEN EIGHTEEN-YEAR-OLD RON KOVIC enlisted in the United States Marine Corps in 1964, he couldn’t foresee that he would return from Vietnam paralyzed and in a wheelchair for life. His best-selling 1976 memoir Born on the Fourth of July became an antiwar classic and was adapted into an Oscar-winning film starring Tom Cruise as Kovic. His follow-up, Hurricane Street, chronicled his advocacy for Vietnam veterans’ rights. A Dangerous Country: An American Elegy completes Kovic’s Vietnam Trilogy, delving deep into his long and often agonizing journey home from war and eventual healing, forgiveness, and spiritual redemption. The book opens with Kovic’s never-before-revealed Vietnam diary (July 7, 1967–July 26, 1968). His entries from this period portray a patriotic young soldier with a strong moral and religious conscience. Kovic then recalls his political awakening after his return from Vietnam confined to a wheelchair following his horrific injury. He also chronicles the tremendous guilt he feels over his accidental killing of a fellow Marine while on patrol. This killing psychologically torments him as much as his severe disability. After years of social, political, and sexual turmoil—and on the brink of suicide—Kovic experiences a powerful epiphany that gives him a reason and purpose to live; a renewed faith and strength to carry on. Although his trauma is severe, his third memoir is ultimately the inspirational story of a survivor finding a way to rise above his depression and despair, forgiving his enemies and himself, and growing deeply committed to a new life.By Lucy Webster. 2023
A powerful, eye-opening insight into navigating the world as a disabled young woman Women&’s lives are shaped by sexism and…
expectations. Disabled people&’s lives are shaped by ableism and a complete lack of expectations. But what happens when you&’re subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection: the struggles, the joys, and the unseen realities of being a disabled woman. From navigating the worlds of education and work, dating, and friendship to managing care, contemplating motherhood, and learning to accept your body against a pervasive narrative that it is somehow broken and in need of fixing, The View From Down Here shines a light on what it really means to move through theworld as a disabled woman.By Max Wallace. 2023
In this "stunning" new history, New York Times bestselling author Max Wallace draws on groundbreaking research to reframe Helen Keller&’s…
journey after the miracle at the water pump, vividly bringing to light her rarely discussed, lifelong fight for social justice across gender, class, race, and ability (Rosemary Sullivan, New York Times bestselling author).Kirkus Best Nonfiction Book of 2023 Raised in Alabama, she sent shockwaves through the South when she launched a public broadside against Jim Crow and donated to the NAACP. She used her fame to oppose American intervention in WWI. She spoke out against Hitler the month he took power in 1933 and embraced the anti-fascist cause during the Spanish Civil War. She was one of the first public figures to alert the world to the evils of Apartheid, raising money to defend Nelson Mandela when he faced the death penalty for High Treason, and she lambasted Joseph McCarthy at the height of the Cold War, even as her contemporaries shied away from his notorious witch hunt. But who was this revolutionary figure? She was Helen Keller. From books to movies to Barbie dolls, most mainstream portrayals of Keller focus heavily on her struggles as a deafblind child—portraying her Teacher, Annie Sullivan, as a miracle worker. This narrative—which has often made Keller a secondary character in her own story—has resulted in few people knowing that her greatest accomplishment was not learning to speak, but what she did with her voice when she found it.After the Miracle is a much-needed corrective to this antiquated narrative. In this first major biography of Keller in decades, Max Wallace reveals that the lionization of Sullivan at the expense of her famous pupil was no accident, and calls attention to Keller&’s efforts as a card-carrying socialist, fierce anti-racist, and progressive disability advocate. Despite being raised in an era when eugenics and discrimination were commonplace, Keller consistently challenged the media for its ableist coverage and was one of the first activists to highlight the links between disability and capitalism, even as she struggled against the expectations and prejudices of those closest to her. Peeling back the curtain that obscured Keller&’s political crusades in favor of her &“inspirational&” childhood, After the Miracle chronicles the complete legacy of one of the 20th century&’s most extraordinary figures.By Sonia Purnell. 2019
'A METICULOUS HISTORY THAT READS LIKE A THRILLER' BEN MACINTYRE, TEN BEST BOOKS TO READ ABOUT WORLD WAR II An…
astounding story of heroism, spycraft, resistance and personal triumph over shocking adversity. 'A rousing tale of derring-do' THE TIMES * 'Riveting' MICK HERRON * 'Superb' IRISH TIMES THE NEW YORK TIMES BESTSELLERIn September 1941, a young American woman strides up the steps of a hotel in Lyon, Vichy France. Her papers say she is a journalist. Her wooden leg is disguised by a determined gait and a distracting beauty. She is there to spark the resistance.By 1942 Virginia Hall was the Gestapo's most urgent target, having infiltrated Vichy command, trained civilians in guerrilla warfare and sprung soldiers from Nazi prison camps. The first woman to go undercover for British SOE, her intelligence changed the course of the war - but her fight was still not over. This is a spy history like no other, telling the story of the hunting accident that disabled her, the discrimination she fought and the secret life that helped her triumph over shocking adversity.'A cracking story about an extraordinarily brave woman' TELEGRAPH'Gripping ... superb ... a rounded portrait of a complicated, resourceful, determined and above all brave woman' IRISH TIMESWINNER of the PLUTARCH AWARD FOR BEST BIOGRAPHYBy William Gibson. 1914
NO ONE COULD REACH HER Twelve-year-old Helen Keller lived in a prison of silence and darkness. Born deaf, blind, and…
mute, with no way to express herself or comprehend those around her, she flew into primal rages against anyone who tried to help her, fighting tooth and nail with a strength born of furious, unknowing desperation. Then Annie Sullivan came. Half-blind herself, but possessing an almost fanatical determination, she would begin a frightening and incredibly moving struggle to tame the wild girl no one could reach, and bring Helen into the world at last....By Julia Fox Garrison. 2006
Julia Fox Garrison refused to listen to the professionals she called Dr. Jerk and Dr. Panic, who—after she suffered a…
massive, debilitating stroke at age thirty-seven—told her she'd probably die, or to Nurse Doom, who ignored her emergency call button. Instead she heeded the advice of kind, gifted Dr. Neuro, who promised her he would "treat your mind as well as your body." Julia figured if she could somehow manage to get herself into a wheelchair, at least she'd always find parking. But after many, many months of hospitalization and rehab—with the help of family, friends, and her own indomitable spirit—Julia not only got into a wheelchair, but she got back out.Don't Leave Me This Way is the funny, inspiring, profoundly moving true story of a woman's fight for her life and dignity—and her determined quest to awaken an entrenched, unfeeling medical community to the fact that there's always a human being inside every patient.By Melissa Blake. 2024
Well-known disability activist and social media influencer Melissa Blake offers a frank, illuminating memoir and a call to action for…
disabled people and allies. In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake&’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple:I wanted desperately to clap back at these vile trolls in a way that would make a statement, not only about how our society views disabilities, but also about the toxicity of our strict and unrealistic beauty standards. Of course I knew that posting those selfies wasn't going to erase the nasty names I'd been called and, the chances were, they would never even see my tweet, but that didn't matter. I wasn't doing it for them; I was doing it for me and every single disabled person who has been bullied before, online and in real life. When people mock how I look, they're not just insulting me. They're insulting all disabled people. We're constantly told that we're repulsive and ugly and not good enough to be seen. This was me pushing back against that toxic, ableist narrative.For the first time, I felt like I was doing something empowering, taking back my power and changing the story. Her tweet went viral, attracting worldwide media attention and interviews with the BBC, USA Today, the Chicago Tribune, PEOPLE magazine, Good Morning America and E! News. Now, in her manifesto, Beautiful People, Blake shares her truths about disability, writing about (among other things): the language we use to describe disabled people ableism, microaggressions, and their pernicious effects what it's like to live in a society that not only isn't designed for you, but actively operates to render you invisible her struggles with self‑image and self‑acceptance the absence of disabled people in popular culture why disabled people aren't tragic heroes Blake also tells the stories of some of the heroes of the disability rights movement in America, in doing so rescuing their incredible achievements from near total obscurity. Highlighting other disabled activists and influencers, Blake&’s work is the calling card of a powerful voice—one that has sparked new, different, better conversations about disability.By Anna Stenning. 2023
Autism is a profoundly contested idea. The focus of this book is not what autism is or what autistic people…
are, but rather, it grapples with the central question: what does it take for autistic people to participate in a shared world as equals with other people? Drawing from her close reading of a range of texts, by autistic authors, filmmakers, bloggers, and academics, Anna Stenning highlights the creativity and imagination in these accounts and also considers the possibilities that emerge when the unexpected and novel aspects of experience are attended to and afforded their due space. Approaching these narrative accounts in the context of both the Anthropocene and neoliberalism Stenning unpacks and reframes understandings about autism and identity, agency and mattering, across sections exploring autistic intelligibility, autistic sensibility, and community-oriented collaboration and care. By moving away from the non-autistic stories about autism that have, over time, dominated public conception of the autistic experience and relationships, as well as the cognitive and psychoanalytic paradigms that have reduced autism and autistic people to a homogeneous group, the book instead reveals the multiplicity of autistic subjectivities and their subsequent understandings of oppression. It calls on readers to listen to what autistic people have to say about the possibilities of resistance and solidarity against intersecting currents and eddies of power, which endanger all who challenge the neoliberal conception of Life. A stirring and meaningful departure from atomized accounts of neurological difference, Narrating the Many Autisms ponders big questions about its topic and finds clarity and meaning in the sense-making practices of autistic individuals and groups. It will appeal to scholarly readers across the fields of disability studies, cultural studies, critical psychology, sociology, anthropology, and literature. The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons [Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND)] 4.0 license.By McCracken Poston Jr.. 2024
&“Wildly entertaining…. Zenith Man By McCracken Poston, Jr. is a true crime book but the events described seems more like…
a John Grisham novel.&” —Mystery Tribune Like a nonfiction John Grisham thriller with echoes of Rainman, Just Mercy, and a captivating smalltown Southern setting, this is the fascinating true story—sometimes humorous, sometimes heartbreaking—of an idealistic young lawyer determined to free an innocent neurodivergent man accused of murdering the wife no one knew he had. An inspiring argument for compassion in the pursuit of true justice for readers of Midnight in the Garden of Good and Evil and Just Mercy.Was this small-town TV repair man &“a harmless eccentric or a bizarre killer&” (Atlanta Journal Constitution). For the first time, Alvin Ridley&’s own defense attorney reveals the inside story of his case and trial in an extraordinary tale of friendship and an idealistic young attorney&’s quest to clear his client&’s name—and, in the process, rebuild his own life. In October 1997, the town of Ringgold in northwest Georgia was shaken by reports of a murder in its midst. A dead woman was found in Alvin Ridley&’s house—and even more shockingly, she was the wife no one knew he had. McCracken Poston had been a state representative before he lost his bid for U.S. Congress and returned to his law career. Alvin Ridley was a local character who once sold and serviced Zenith televisions. Though reclusive and an outsider, the &“Zenith Man,&” as Poston knew him, hardly seemed capable of murder. Alvin was a difficult client, storing evidence in a cockroach-infested suitcase, unwilling to reveal key facts to his defender. Gradually, Poston pieced together the full story behind Virginia and Alvin&’s curious marriage and her cause of death—which was completely overlooked by law enforcement. Calling on medical experts, testimony from Alvin himself, and a wealth of surprising evidence gleaned from Alvin&’s junk-strewn house, Poston presented a groundbreaking defense that allowed Alvin to return to his peculiar lifestyle, a free man. Years after his trial, Alvin was diagnosed with autism spectrum disorder, a revelation that sheds light on much of his lifelong personal battle—and shows how easily those who don&’t fit societal norms can be castigated and misunderstood. Part true crime, part courtroom drama, and full of local color, Zenith Man is also the moving story of an unexpected friendship between two very different men that changed—and perhaps saved—the lives of both.By Anna Gazmarian. 2024
&“This moving memoir is always attuned to the possibilities of community and spiritual sustenance, even as it refuses to efface…
the struggles at its core—believing that this struggle, too, can be a thing of beauty.&” —Leslie Jamison, author of The RecoveringIn this revelatory memoir, Anna Gazmarian tells the story of how her evangelical upbringing in North Carolina failed to help her understand the mental health diagnosis she received, and the work she had to do to find proper medical treatment while also maintaining her faith. When Anna is diagnosed with bipolar disorder in 2011, she&’s faced with a conundrum: while the diagnosis provides clarity about her manic and depressive episodes, she must confront the stigma that her evangelical community attaches to her condition. Over the course of ten years, we follow Anna on her journey to reframe her understanding of mental health to expand the limits of what her religious practice can offer. In Devout: A Memoir of Doubt, Anna shows that the pursuing our emotional health and our spiritual well-being is one single mission and, in both cases, an act of faith.By Rebekah Taussig. 2020
A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to…
paint a beautiful, nuanced portrait of a body that looks and moves differently than most.Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.In her own words, the legendary American icon who overcame adversity to become a brilliant writer and powerful advocate for…
the disabled: The Story of My Life, The World I Live In, plus a dozen revealing personal letters, public speeches, essays, and moreHere, in a deluxe hardcover edition, is the inspiring story of an American icon—&“the greatest woman of our age,&” as Winston Churchill put it—in her own words.The Story of My Life (1903), published just before she became the first deaf-blind college graduate in the United States, brought Helen Keller worldwide fame, and has remained a touchstone for generations. Recounting her astonishing relationship with her teacher, Annie Sullivan, "the Miracle Worker," it offers still-vivid testimony of the transformative power of love and faith in overcoming adversity. Keller&’s underappreciated literary artistry and philosophical acumen are especially evident in the personal essays that make up The World I Live In (1908): exploring her own &“disability,&” she reflects profoundly on language, thinking, dreams, belief, and the relations between the senses. Also included are more than a dozen letters, speeches, essays, and other works—most of them from out-of-print, uncollected, or previously unpublished sources—charting more than 50 years of Keller&’s exemplary life and career. These pieces reveal her commitments to women&’s rights, workers&’ rights, racial justice, and peace, as well as her advocacy for the disabled. Kim E. Nielsen, Keller&’s biographer and the author of A Disability History of the United States, introduces the volume, which includes a 16-page portfolio of photographs and a newly researched chronology of Keller&’s life, along with authoritative notes and an index.By Porochista Khakpour. 2018
A Best Book of the Year: Real Simple, Entropy, Mental Floss, Bitch Media, The Paris Review, and LitHub.Time Magazine's Best Memoirs of…
2018 • Boston Globe's 25 Books We Can't Wait to Read in 2018 • Buzzfeed's 33 Most Exciting New Books • GQ Best Non Fiction Book of 2018 • Bustle’s 28 Most Anticipated Nonfiction Books of 2018 list • Nylon’s 50 Books We Can’t Wait to Read in 2018 • Electric Literature’s 46 Books to Read By Women of Color in 2018 “Porochista Khakpour’s powerful memoir, Sick, reads like a mystery and a reckoning with a love song at its core. Humane, searching, and unapologetic, Sick is about the thin lines and vast distances between illness and wellness, healing and suffering, the body and the self. Khakpour takes us all the way in on her struggle toward health with an intelligence and intimacy that moved, informed, and astonished me.” — Cheryl Strayed, New York Times bestselling author of WildA powerful, beautifully rendered memoir of chronic illness, misdiagnosis, addiction, and the myth of full recovery.For as long as author Porochista Khakpour can remember, she has been sick. For most of that time, she didn't know why. Several drug addictions, some major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's grueling, emotional journey—as a woman, an Iranian-American, a writer, and a lifelong sufferer of undiagnosed health problems—in which she examines her subsequent struggles with mental illness and her addiction to doctor prescribed benzodiazepines, that both aided and eroded her ever-deteriorating physical health. Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, Santa Fe, and a college town in Germany—as she meditates on the physiological and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. A story of survival, pain, and transformation, Sick candidly examines the colossal impact of illness on one woman's life by not just highlighting the failures of a broken medical system but by also boldly challenging our concept of illness narratives.By Jwala Narayanan, Anjana Xavier, Jonathan Evans, Narinder Kapur, Barbara Wilson. 2024
Neuropsychological Consequences of COVID-19 focuses on Anjana’s journey as a COVID survivor following a brain injury that left her with…
a very rare neuropsychological syndrome called Balint’s syndrome, a disorder associated with difficulties in visual and spatial coordination. It is also the first book of its kind to provide a first-hand account from India on surviving brain injury, from diagnosis, recovery and rehabilitation, providing the therapeutic milieu in the Indian context and exploring cultural influences on rehabilitation.Written jointly by Anjana, her neuropsychologist and the international experts in the field of neuropsychology who were also involved in her diagnosis and care, the book highlights how COVID-19, a virus primarily affecting the respiratory system, can also result in a disabling brain injury. It describes Anjana’s recovery and the rehabilitation she received and provides a deeper understanding of this experience of a very rare condition through the views of Anjana herself. In addition, Anjana’s rehabilitation journey stumbles upon many important themes of rehabilitation including cultural sensitivity, personal identity, resilience, role of family and rehabilitation in a low to middle income country.This book is valuable reading for clinical and neuropsychologists, neurologists, other rehabilitation therapists including physiotherapists, occupational therapists, nurses and social work professionals, particularly those interested in cross cultural rehabilitation. It will also be of interest to students in these fields.By Paige Layle. 2024
Autism acceptance activist and TikTok influencer Paige Layle shares her deeply personal journey to diagnosis and living life autistically. &“For far…
too long, I was told I was just like everyone else. But knew it couldn&’t be true. Living just seemed so much harder for me. This wasn&’t okay. This wasn&’t normal. This wasn&’t functioning. And it certainly wasn&’t fine.&” Paige Layle was normal. She lived in the countryside with her mom, dad, and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer &“why&” in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control. But Paige was normal. She smiled in photos, picked her feet up when her mom needed to vacuum instead of fleeing the room, and earned high grades. She had friends and loved to perform in local theater productions. It wasn&’t until a psychiatrist said she wasn&’t doing okay, that anyone believed her. In But Everyone Feels This Way, Paige Layle shares her story as an autistic woman diagnosed late. Armed with the phrase &“Autism Spectrum Disorder&” (ASD), Paige challenges stigmas, taboos, and stereotypes while learning how to live her authentic, autistic life.