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Living with Dying: A Handbook for End-of-Life Healthcare Practitioners (End-of-Life Care: A Series)
By Joan Berzoff, Phyllis Silverman. 2004
The first resource on end-of-life care for healthcare practitioners who work with the terminally ill and their families, Living with…
Dying begins with the narratives of five healthcare professionals, who, when faced with overwhelming personal losses altered their clinical practices and philosophies. The book provides ways to ensure a respectful death for individuals, families, groups, and communities and is organized around theoretical issues in loss, grief, and bereavement and around clinical practice with individuals, families, and groups. Living with Dying addresses practice with people who have specific illnesses such as AIDS, bone marrow disease, and cancer and pays special attention to patients who have been stigmatized by culture, ability, sexual orientation, age, race, or homelessness. The book includes content on trauma and developmental issues for children, adults, and the aging who are dying, and it addresses legal, ethical, spiritual, cultural, and social class issues as core factors in the assessment of and work with the dying. It explores interdisciplinary teamwork, supervision, and the organizational and financing contexts in which dying occurs. Current research in end-of-life care, ways to provide leadership in the field, and a call for compassion, insight, and respect for the dying makes this an indispensable resource for social workers, healthcare educators, administrators, consultants, advocates, and practitioners who work with the dying and their families.Invisible Caregivers: Older Adults Raising Children in the Wake of HIV/AIDS
By Daphne Joslin. 2002
An understudied aspect of the HIV/AIDS epidemic is the creation of hundreds of thousands of grandparent-headed households that have become…
home to children bereft of one or both of their parents. Such "skip-generation parenting" presents a host of challenges to the families involved and the social programs designed to assist them. Despite this unprecedented caregiving responsibility, older surrogate parents remain relatively invisible, hidden in the shadows of HIV care and the demands of raising a child. The primary goal of Invisible Caregivers is to generate, support, and guide program and policy initiatives designed to meet the needs of elder surrogates and their families.Most social service programs are not able to identify the needs of older surrogates, often because these surrogate parents in HIV-infected families are reluctant to make their needs known for fear of social stigma or possible reductions of benefits. Multiple systemic barriers to case management and other services also frustrate attempts to bring available resources to elder caregivers. These barriers include professional ignorance or denial that HIV affects surrogates, eligibility restrictions through CARE, limited funding and age restriction on OAA, and a fragmented health and human service system. Because the issues facing elder caregivers are many and varied, this collection covers a host of issues: community health, aging, HIV services, child welfare, education, public policy, and mental health.Lesbian, Gay, Bisexual, and Transgender Aging: Research and Clinical Perspectives
By Douglas Kimmel, Tara Rose, Steven David. 2006
Lesbian, Gay, Bisexual, and Transgender Aging brings together cutting-edge research, practical information, and innovative thinking regarding the characteristics and processes…
of aging among lesbian, gay, bisexual, and transgender individuals. Written by experts in the field, the book covers a range of subjects and provides a comprehensive knowledge base for practitioners, students, and researchers. Contributors address topics such as sexuality, relationships, legal issues, retirement planning, physical and mental health, substance abuse, community needs, gay and lesbian grandparents, and a model agency dedicated to delivering services to the senior LGBT population. Their writing takes a gay-affirmative approach that focuses on resilience, coping, and successful adaptation to aging and is sensitive to the importance of historical oppression in the lives of older members of sexual minorities. The authors also pay close attention to ethnic and cultural issues and identify where further research is needed.Lesbian, Gay, Bisexual, and Transgender Aging is a groundbreaking collection of some of the most significant voices in this area of research today. Gerontologists and those who serve the LGBT community are in great need of the information contained in this singular and definitive resource.Indigenous Prosperity and American Conquest recovers the agrarian village world Indian women created in the lush lands of the Ohio…
Valley. Algonquian-speaking Indians living in a crescent of towns along the Wabash tributary of the Ohio were able to evade and survive the Iroquois onslaught of the seventeenth century, to absorb French traders and Indigenous refugees, to export peltry, and to harvest riparian, wetland, and terrestrial resources of every description and breathtaking richness. These prosperous Native communities frustrated French and British imperial designs, controlled the Ohio Valley, and confederated when faced with the challenge of American invasion.By the late eighteenth century, Montreal silversmiths were sending their best work to Wabash Indian villages, Ohio Indian women were setting the fashions for Indigenous clothing, and European visitors were marveling at the sturdy homes and generous hospitality of trading entrepots such as Miamitown. Confederacy, agrarian abundance, and nascent urbanity were, however, both too much and not enough. Kentucky settlers and American leaders—like George Washington and Henry Knox—coveted Indian lands and targeted the Indian women who worked them. Americans took women and children hostage to coerce male warriors to come to the treaty table to cede their homelands. Appalachian squatters, aspiring land barons, and ambitious generals invaded this settled agrarian world, burned crops, looted towns, and erased evidence of Ohio Indian achievement. This book restores the Ohio River valley as Native space.In an auditorium in Belcourt, North Dakota, on a chilly October day in 1932, Robert Bruce and his fellow tribal…
citizens held the political fate of the Turtle Mountain Band of Chippewa Indians in their hands. Bruce, and the others, had been asked to adopt a tribal constitution, but he was unhappy with the document, as it limited tribal governmental authority. However, white authorities told the tribal nation that the proposed constitution was a necessary step in bringing a lawsuit against the federal government over a long-standing land dispute. Bruce's choice, and the choice of his fellow citizens, has shaped tribal governance on the reservation ever since that fateful day.In this book, Keith Richotte Jr. offers a critical examination of one tribal nation's decision to adopt a constitution. By asking why the citizens of Turtle Mountain voted to adopt the document despite perceived flaws, he confronts assumptions about how tribal constitutions came to be, reexamines the status of tribal governments in the present, and offers a fresh set of questions as we look to the future of governance in Native America and beyond.Monumental Mobility: The Memory Work of Massasoit
By Jean M. O'Brien, Lisa Blee. 2019
Installed at Plymouth, Massachusetts, in 1921 to commemorate the tercentenary of the landing of the Pilgrims, Cyrus Dallin's statue Massasoit…
was intended to memorialize the Pokanoket Massasoit (leader) as a welcoming diplomat and participant in the mythical first Thanksgiving. But after the statue's unveiling, Massasoit began to move and proliferate in ways one would not expect of generally stationary monuments tethered to place. The plaster model was donated to the artist's home state of Utah and prominently displayed in the state capitol; half a century later, it was caught up in a surprising case of fraud in the fine arts market. Versions of the statue now stand on Brigham Young University's campus; at an urban intersection in Kansas City, Missouri; and in countless homes around the world in the form of souvenir statuettes.As Lisa Blee and Jean M. O'Brien show in this thought-provoking book, the surprising story of this monumental statue reveals much about the process of creating, commodifying, and reinforcing the historical memory of Indigenous people. Dallin's statue, set alongside the historical memory of the actual Massasoit and his mythic collaboration with the Pilgrims, shows otherwise hidden dimensions of American memorial culture: an elasticity of historical imagination, a tight-knit relationship between consumption and commemoration, and the twin impulses to sanitize and grapple with the meaning of settler-colonialism.The Lives in Objects: Native Americans, British Colonists, and Cultures of Labor and Exchange in the Southeast
By Jessica Yirush Stern. 2017
In The Lives in Objects, Jessica Yirush Stern presents a thoroughly researched and engaging study of the deerskin trade in…
the colonial Southeast, equally attentive to British American and Southeastern Indian cultures of production, distribution, and consumption. Stern upends the long-standing assertion that Native Americans were solely gift givers and the British were modern commercial capitalists. This traditional interpretation casts Native Americans as victims drawn into and made dependent on a transatlantic marketplace. Stern complicates that picture by showing how both the Southeastern Indian and British American actors mixed gift giving and commodity exchange in the deerskin trade, such that Southeastern Indians retained much greater agency as producers and consumers than the standard narrative allows. By tracking the debates about Indian trade regulation, Stern also reveals that the British were often not willing to embrace modern free market values. While she sheds new light on broader issues in native and colonial history, Stern also demonstrates that concepts of labor, commerce, and material culture were inextricably intertwined to present a fresh perspective on trade in the colonial Southeast.Crafting an Indigenous Nation: Kiowa Expressive Culture in the Progressive Era
By Jenny Tone-Pah-Hote. 2019
In this in-depth interdisciplinary study, Jenny Tone-Pah-Hote reveals how Kiowa people drew on the tribe's rich history of expressive culture…
to assert its identity at a time of profound challenge. Examining traditional forms such as beadwork, metalwork, painting, and dance, Tone-Pah-Hote argues that their creation and exchange were as significant to the expression of Indigenous identity and sovereignty as formal political engagement and policymaking. These cultural forms, she argues, were sites of contestation as well as affirmation, as Kiowa people used them to confront external pressures, express national identity, and wrestle with changing gender roles and representations. Combatting a tendency to view Indigenous cultural production primarily in terms of resistance to settler-colonialism, Tone-Pah-Hote expands existing work on Kiowa culture by focusing on acts of creation and material objects that mattered as much for the nation's internal and familial relationships as for relations with those outside the tribe. In the end, she finds that during a time of political struggle and cultural dislocation at the turn of the twentieth century, the community's performative and expressive acts had much to do with the persistence, survival, and adaptation of the Kiowa nation.Aging Nationally in Contemporary Poland: Memory, Kinship, and Personhood (Global Perspectives on Aging)
By Jessica C. Robbins. 2021
Active aging programs that encourage older adults to practice health-promoting behaviors are proliferating worldwide. In Poland, the meanings and ideals…
of these programs have become caught up in the sociocultural and political-economic changes that have occurred during the lifetimes of the oldest generations—most visibly, the transition from socialism to capitalism. Yet practices of active aging resonate with older forms of activity in late life in ways that exceed these narratives of progress. Moreover, some older Poles come to live valued, meaningful lives in old age despite threats to respect and dignity posed by illness and debility. Through intimate portrayals of a wide range of experiences of aging in Poland, Jessica C. Robbins shows that everyday practices of remembering and relatedness shape how older Poles come to be seen by themselves and by others as living worthy, valued lives. In Aging Nationally in Contemporary Poland, we see how memories and understandings of the Polish nation intersect with ideals and experiences of late life to produce forms of life that are not reducible to binary categories of health or illness, independence or dependence, or socialism or capitalism.Monuments to Absence: Cherokee Removal and the Contest over Southern Memory
By Andrew Denson. 2017
The 1830s forced removal of Cherokees from their southeastern homeland became the most famous event in the Indian history of…
the American South, an episode taken to exemplify a broader experience of injustice suffered by Native peoples. In this book, Andrew Denson explores the public memory of Cherokee removal through an examination of memorials, historic sites, and tourist attractions dating from the early twentieth century to the present. White southerners, Denson argues, embraced the Trail of Tears as a story of Indian disappearance. Commemorating Cherokee removal affirmed white possession of southern places, while granting them the moral satisfaction of acknowledging past wrongs. During segregation and the struggle over black civil rights, removal memorials reinforced whites' authority to define the South's past and present. Cherokees, however, proved capable of repossessing the removal memory, using it for their own purposes during a time of crucial transformation in tribal politics and U.S. Indian policy. In considering these representations of removal, Denson brings commemoration of the Indian past into the broader discussion of race and memory in the South.By 2009, reverberations of economic crisis spread from the United States around the globe. As corporations across the United States…
folded, however, small businesses on the Qualla Boundary of the Eastern Band of Cherokee Indians (EBCI) continued to thrive. In this rich ethnographic study, Courtney Lewis reveals the critical roles small businesses such as these play for Indigenous nations. The EBCI has an especially long history of incorporated, citizen-owned businesses located on their lands. When many people think of Indigenous-owned businesses, they stop with prominent casino gaming operations or natural-resource intensive enterprises. But on the Qualla Boundary today, Indigenous entrepreneurship and economic independence extends to art galleries, restaurants, a bookstore, a funeral parlor, and more.Lewis's fieldwork followed these businesses through the Great Recession and against the backdrop of a rapidly expanding EBCI-owned casino. Lewis's keen observations reveal how Eastern Band small business owners have contributed to an economic sovereignty that empowers and sustains their nation both culturally and politically.Kika Kila: How the Hawaiian Steel Guitar Changed the Sound of Modern Music
By John W. Troutman. 2016
Since the nineteenth century, the distinct tones of k&299;k&257; kila, the Hawaiian steel guitar, have defined the island sound. Here…
historian and steel guitarist John W. Troutman offers the instrument's definitive history, from its discovery by a young Hawaiian royalist named Joseph Kekuku to its revolutionary influence on American and world music. During the early twentieth century, Hawaiian musicians traveled the globe, from tent shows in the Mississippi Delta, where they shaped the new sounds of country and the blues, to regal theaters and vaudeville stages in New York, Berlin, Kolkata, and beyond. In the process, Hawaiian guitarists recast the role of the guitar in modern life. But as Troutman explains, by the 1970s the instrument's embrace and adoption overseas also worked to challenge its cultural legitimacy in the eyes of a new generation of Hawaiian musicians. As a consequence, the indigenous instrument nearly disappeared in its homeland.Using rich musical and historical sources, including interviews with musicians and their descendants, Troutman provides the complete story of how this Native Hawaiian instrument transformed not only American music but the sounds of modern music throughout the world.In 1972, the Bureau of Indian Affairs terminated its twenty-year-old Voluntary Relocation Program, which encouraged the mass migration of roughly…
100,000 Native American people from rural to urban areas. At the time the program ended, many groups--from government leaders to Red Power activists--had already classified it as a failure, and scholars have subsequently positioned the program as evidence of America's enduring settler-colonial project. But Douglas K. Miller here argues that a richer story should be told--one that recognizes Indigenous mobility in terms of its benefits and not merely its costs. In their collective refusal to accept marginality and destitution on reservations, Native Americans used the urban relocation program to take greater control of their socioeconomic circumstances. Indigenous migrants also used the financial, educational, and cultural resources they found in cities to feed new expressions of Indigenous sovereignty both off and on the reservation. The dynamic histories of everyday people at the heart of this book shed new light on the adaptability of mobile Native American communities. In the end, this is a story of shared experience across tribal lines, through which Indigenous people incorporated urban life into their ideas for Indigenous futures.The Lumbee Indians: An American Struggle
By Malinda Maynor Lowery. 2018
Jamestown, the Lost Colony of Roanoke, and Plymouth Rock are central to America's mythic origin stories. Then, we are told,…
the main characters--the "friendly" Native Americans who met the settlers--disappeared. But the history of the Lumbee Tribe of North Carolina demands that we tell a different story. As the largest tribe east of the Mississippi and one of the largest in the country, the Lumbees have survived in their original homelands, maintaining a distinct identity as Indians in a biracial South. In this passionately written, sweeping work of history, Malinda Maynor Lowery narrates the Lumbees' extraordinary story as never before. The Lumbees' journey as a people sheds new light on America's defining moments, from the first encounters with Europeans to the present day. How and why did the Lumbees both fight to establish the United States and resist the encroachments of its government? How have they not just survived, but thrived, through Civil War, Jim Crow, the civil rights movement, and the war on drugs, to ultimately establish their own constitutional government in the twenty-first century? Their fight for full federal acknowledgment continues to this day, while the Lumbee people's struggle for justice and self-determination continues to transform our view of the American experience. Readers of this book will never see Native American history the same way.Defiant Indigeneity: The Politics of Hawaiian Performance (Critical Indigeneities)
By Stephanie Nohelani Teves. 2018
"Aloha" is at once the most significant and the most misunderstood word in the Indigenous Hawaiian lexicon. For K&257;naka Maoli…
people, the concept of "aloha" is a representation and articulation of their identity, despite its misappropriation and commandeering by non-Native audiences in the form of things like the "hula girl" of popular culture. Considering the way aloha is embodied, performed, and interpreted in Native Hawaiian literature, music, plays, dance, drag performance, and even ghost tours from the twentieth century to the present, Stephanie Nohelani Teves shows that misunderstanding of the concept by non-Native audiences has not prevented the K&257;naka Maoli from using it to create and empower community and articulate its distinct Indigenous meaning.While Native Hawaiian artists, activists, scholars, and other performers have labored to educate diverse publics about the complexity of Indigenous Hawaiian identity, ongoing acts of violence against Indigenous communities have undermined these efforts. In this multidisciplinary work, Teves argues that Indigenous peoples must continue to embrace the performance of their identities in the face of this violence in order to challenge settler-colonialism and its efforts to contain and commodify Hawaiian Indigeneity.Hospice Social Work (End-of-Life Care: A Series)
By Dona Reese. 2013
The first text to explore the history, characteristics, and challenges of hospice social work, this volume weaves leading research into…
an underlying framework for practice and care. A longtime practitioner, Dona J. Reese describes the hospice social work role in assessment and intervention with individuals, families, groups, organizations, and the community, while honestly confronting the personal and professional difficulties of such life-changing work. She introduces a well-tested model of psychosocial and spiritual variables that predict hospice client outcomes, and she advances a social work assessment tool to document their occurrence. Operating at the center of national leaders' coordinated efforts to develop and advance professional organizations and guidelines for end-of-life care, Reese reaches out with support and practice information, helping social workers understand their significance in treating the whole person, contributing to the cultural competence of hospice settings, and claiming a definitive place within the hospice team.The Lioness in Winter: Writing an Old Woman's Life
By Ann Burack-Weiss. 2015
When she started working with the aged more than forty years ago, Ann Burack-Weiss began storing the knowledge and skills…
she thought would help when she got old herself. It was not until she hit her mid-seventies that she realized she had packed sneakers to climb Mount Everest, not anticipating the crevices and chasms that constitute the rocky terrain of old age. The professional gerontological and social work literature offered little help, so she turned to the late-life works of beloved women authors who had bravely climbed the mountain and sent back news from the summit. Maya Angelou, Colette, Simone de Beauvoir, Joan Didion, Marguerite Duras, M. F. K. Fisher, Doris Lessing, Mary Oliver, Adrienne Rich, May Sarton, and Florida Scott-Maxwell were among the many guides she turned to for inspiration. In The Lioness in Winter, Burack-Weiss blends an analysis of key writings from these and other famed women authors with her own wisdom to create an essential companion for older women and those who care for them. She fearlessly examines issues such as living with loss, finding comfort and joy in unexpected places, and facing disability and death. This book is filled with powerful passages from women who turned their experiences of aging into art, and Burack-Weiss ties their words to her own struggles and epiphanies, framing their collective observations with key insights from social work practice.Lifting Our Voices: The Journeys Into Family Caregiving of Professional Social Workers
By Joyce O. Beckett. 2008
Lifting Our Voices is the only book to explore the dual roles of professional social workers who are also family…
caregivers and the only collection on caregiving in which the majority of contributors are African American. After discussing the relevant literature, Lifting Our Voices vividly and sensitively presents the caregiving experiences of ten professional social workers. Using professional and theoretical knowledge and skills, each contributor draws implications for various levels of social work and human service interventions. These poignant descriptions and analyses recount both the frustrations and barriers of negotiating social service agencies and other institutions and the joys and triumphs of family caregiving. Lifting Our Voices frankly discusses how a professional education either prepares or fails to equip an individual with the skills for successful intervention on behalf of a loved one. Contributors hail from rich and varied backgrounds, revealing the importance of age, ethnicity, gender, marital status, and gerontological expertise in the practice of family caregiving. These essays explore situations rarely reported on in the literature, such as caregivers and care recipients who represent the lifespan from preschool to retirement. Lifting Our Voices graphically describes types of caregiving that are seldom discussed, including simultaneous caregiving to multiple family members and reciprocal and sequential caregiving, thus broadening and refining the very concepts of "caregiving" and "family."Home- and Community-Based Services for Older Adults: Aging in Context
By Keith Anderson, Holly Dabelko-Schoeny, Noelle Fields. 2018
As older adults and their families opt out of nursing homes, a range of home and community-based services (HCBS) have…
risen up to provide care. HCBS span platforms and approaches, from home health care to assisted living to community-based hospice to adult day services. These models are, for most, preferable to nursing homes and allow older adults to “age in place”—live longer in their own homes and communities. Home- and Community-Based Services for Older Adults examines the existing and emerging models of HCBS, including the history, theory, research, policy, and practices across care settings. Emphasizing the multidisciplinary and interprofessional practice approaches used to deliver care, this book is an essential learning tool for students interested in medicine, nursing, social work, allied health professions, case management, health care administration, and gerontology. As the population of older adults grows, the authors ask, how can we best meet the needs of older adults and their families in the most effective, cost-conscious way while honoring their care choices?The Family Experience of Dementia: A Reflective Workbook for Professionals
By Gary Morris, Jack Morris. 2021
Dementia not only affects the person presented with the diagnosis, but their family and friends too. This book provides practitioners…
with strategies to support the whole family and understand their dementia journey both pre- and post-diagnosis. This is facilitated through a series of activities and reflective prompts. There is also a dedicated chapter offering structured exercises for health and social care practitioners and students. The book introduces the Lawrence family, where Peter has been diagnosed with dementia, and provides perspectives from each family member, allowing practitioners to become acquainted with the lived experience of everyone involved. The reflective questions allow readers to become actively engaged to maximise their knowledge and understanding, and to better contextualize what the dementia experience feels like for family and friends. With its focus on the all-important lived experience of the whole family during the diagnostic process and beyond, this is essential reading for any practitioner working with people with dementia.